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Thoughts from Ron: Fall 2016 Newsletter

I am constantly reminded of the strength of our CCALS community, and the opportunities that result directly from
our relationships with families.

I am pleased to announce the opening of our new office in Boston which came about as a direct contribution from members of our community. This space will allow us to meet locally with ALS families as well as with hospital staff members.
A 24 hour RadioThon commencing at 6am on November 4th that will fundraise for CCALS in honor of Brad Martin was organized by the radio station for which he works, Cool 102.

I invite you to see the trailer of a feature length documentary titled Being There (available at which I was asked to be part of. It will be screened in Switzerland in November and December. We will post further details of the US release on

With the families I have worked, there is an opportunity for the exchange of ideas and knowledge. A give-and-take of conversation, the sharing of thoughts, a lending of expertise. Our families are what make the CCALS community so strong and resilient.

It is with your continued support that we are able to make the reflective space of the Education and Retreat Center a reality.

It is with your constant care that we are able to serve an ever-growing numbers of families caught in the extreme web of the ALS circumstance. You make it possible.

Side by side,

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