1st Annual Swing for Sue

Join us for the 1st Annual Swing for Sue, a golf tournament dedicated to honoring the strength, resilience, and spirit of Susan Long. All proceeds from this tournament will benefit Compassionate Care ALS, an organization that has provided invaluable support to families navigating this challenging disease. We invite golfers of all levels to come together in support of an incredible woman and an important cause.

ALS does not define Susan Long. Anyone who knows Sue recognizes her as the most positive person in any room—a "riot," a "rabble rouser," loving, kind, obsessed with her grandkids, and someone who would do anything for those she cares about. The proud mother of three and even prouder grandmother of five (soon to be six), Sue is selfless and resilient, and she won’t back down to ALS without a fight!

Sue’s earliest symptoms began in late 2021, starting with stiffness and foot drop in her left leg. Over time, her condition worsened, requiring a cane, then a walker, and eventually a wheelchair after a fall that broke her hip. Sue visited every Boston hospital and consulted world-renowned doctors, pushing for answers. Month after month, she advocated for herself, which turned into years of navigating different “suggestions” regarding her declining mobility. Finally, after two years, she was officially diagnosed on her 67th birthday September 26th, 2023.

Before the term "YOLO" (You Only Live Once) became popular, Sue was already living by this motto. Now, a year after her diagnosis, her overflowing positivity stands even stronger. She exemplifies gratitude each and every day, knowing how lucky she is. She is happy to share her story to bring awareness and hope to all those impacted by ALS. A few of her mottos include “You never know how strong you are until you have to be” and “I’m doing as much as I can for as long as I can” in relation to her health. Last year, we rallied around the hashtag #FightLikeSue, but we have decided that #LiveLikeSue is more accurate.