I am honored to run the 2024 Boston Marathon, representing CCALS, an organization that continues to go above and beyond in their mission. I was first introduced to Ron Hoffman and Compassionate Care ALS through Andrew Frates, an ALS advocate and the younger brother of the late Pete Frates. I immediately noticed the significant impact of the organization through its unwavering care and support for individuals living with ALS, along with their families and communities.

In life, I am often reminded of the words, “Be passionate, be genuine, be hardworking, and don’t ever be afraid to be great.” These profound words are a legacy of the beloved Pete Frates — a mentor, a friend, and hero in my life and the lives of so many. Pete was a man who taught us all meaningful lessons through the way in which he chose to live his life — with courage and purpose — amidst a long-fought seven year battle with ALS. We will forever be grateful for you, Pete, and for all that you gave to leave this world a much better place. This one’s for you!

I would also like to dedicate this run to Marguerite Cullen, a family friend who lost her battle to ALS in 2007, to my friend Tim Hoffman who was diagnosed in 2020 and continues his battle today, and to all of the courageous individuals who have fought and continue to fight against this unrelenting disease. I recently learned that CCALS was a part of Marguerite’s journey over 17 years ago and is also a valuable resource to Tim today. CCALS never ceases to amaze me with the depth and reach of their support.

Please join me in supporting Compassionate Care ALS and sponsor me on my journey to the Boston Marathon. Thank you so much for your support!

-Johnny