Resources
The resources listed on this site are a good place to start learning about ALS as a disease, accessibility, durable equipment, end-of-life care and the contemplative practices that inform and sustain what we at CCALS do. The resources listed here are those that we have seen have a positive impact while working with ALS patients since 1998. Click on any category to see a full list of helpful websites, suggested books, and other useful resources. This list is continually being updated, so please check back often. If you have questions or need more information on any item call or email at 508-444-6775 or info@ccals.org.
ALS One Partnership
Over the years Compassionate Care ALS has developed a list of resources to assist ALS families in living with and navigating the complexities of ALS. The list is continually refined with support from our ALS One Partners, Massachusetts General Hospital (MGH), University of Massachusetts Medical School (UMMS) and ALS TDI. CCALS has worked with Dr. Cudkowicz at MGH and Dr. Brown at UMMS since 1997 and has known ALS TDI since the organization began. Read our brochure to learn more about the partnership and resources offered.
Equipment
Communication
Clinical Trials
Research and Pharmaceuticals
