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Resources

The resources listed on this site are a good place to start learning about ALS as a disease, accessibility, durable equipment, end-of-life care and the contemplative practices that inform and sustain what we at CCALS do. The resources listed here are those that we have seen have a positive impact while working with ALS patients since 1998. Click on any category to see a full list of helpful websites, suggested books, and other useful resources. This list is continually being updated, so please check back often. If you have questions or need more information on any item call or email at 508-444-6775 or info@ccals.org.

Equipment

Alternative & Augmentative Communication (AAC)

People with ALS or a neurological condition may experience a weakening in the muscles used for speaking, and may require AAC, Alternative and Augmentative Communication support. AAC is simply all of the tools that someone can use to communicate besides talking. Approximately 80% of our families will implement AAC over the course of their lives. We can advise and often provide tools that help maintain the ability to ‘speak’ and to also access their technology. We work with Speech-Language Pathologists (SLPs) and Occupational Therapists (OTs) to customize the best way to meet each person’s communication needs. Here are some examples of tools that are available, and links to some of our favorite assists.

Educational Videos & Literature

Research, Pharmaceuticals, & other ALS Community Organizations

The work of CCALS is possible thanks to our ALS One Partners, Massachusetts General Hospital (MGH), University of Massachusetts Medical School (UMMS), ALS TDI, and numerous others. CCALS has worked with Dr. Cudkowicz at MGH and Dr. Brown at UMMS since 1997 and has known ALS TDI since the organization began. Over the years since, CCALS has joined hands with many other trail-breaking organizations within the ALS community to improve the availability and quality of assistance to ALS families in living with and navigating the complexities of ALS.

Accessible Vans for Sale

2017 Dodge Grand Caravan SXT Accessible Vehicle

39,186 miles. $35,000.
Contact Karen at rottiron@comcast.net.

Medicare & Care Resources