ALS Patient, Family and Caregiver Support Program

When a family receives the devastating diagnosis of ALS, they are faced with an overwhelming array of questions, paperwork, medical advice, financial and logistical challenges, and life-altering changes. Conventional health care does not begin to address the complexity of these needs. That is where CCALS steps in to fill the void in services. Our ALS Patient, Family, and Caregiver Support Program includes making home visits to meet with families face to face; engaging in intimate dialogue around disease progression, dying and death; offering guidance, providing emotional support; helping families obtain durable goods not covered by insurance; and referrals to numerous specialists. In addition to frequently visiting those living with ALS at home, our staff are regularly available for consultation over the phone.