CCALS Boston Marathon

On April 21st, I will be running in the 118th Boston Marathon in order to raise money for Compassionate Care ALS (CCALS). Although I only have only a short time to train for this event, I am beyond excited and completely honored for this opportunity to run in celebration of the life of my uncle Wayne, who lost his life to ALS earlier this year.
Amytrophic Lateral Sclerosis (ALS) is a degenerative and fatal neuromuscular disease that affects more than 30,000 Americans. There is currently no known cure for it. While developments in medical technology and pharmacological research have lengthened the life expectancy of those diagnosed, the financial and emotional burdens faced by families dealing with this disease are daunting. My uncle Wayne and my aunt Eileen were blessed to have the support of CCALS, which supported them throughout his battle with ALS, providing medical equipment, emotional support, and the means to fight this terrible disease under his own terms and in his own home.
Wayne’s compassion, his unwavering attitude, and no-BS nature was (and still is) inspiration to his friends and family. Having worked as an occupational therapist for over 15 years, Wayne understood that people with diseases or illnesses often require a specific course of care to remedy or alleviate symptoms associated with their ailments. While he was ill, he told me stories about the (sometimes wild) lengths to which he used to have to go just to obtain basic equipment for those who had no mobility and even less hope. Wayne chose this profession because it was incredibly fulfilling to assist and interact with those in need, and he was perfect for it because he was headstrong and had a no-BS attitude, for which we all loved him. There was nobody he was scared to confront, and nobody he would accept “no” from, if it meant preventing him from getting his job done.
Though Wayne has gone on to a better place and we all miss him very much, we are honored to give back to the organization that helped our family so much for the past several years, CCALS. Ron Hoffman and the CCALS team have been there for Wayne’s family every step of the way, and the very least I can do is “pay it forward.” Not everyone has the amazing network of family and friends that Wayne has, but everyone afflicted with this terrible disease needs a level of care and assistance that CCALS in uniquely prepared to deliver.
Living with ALS is like running a marathon each and every day. The least I can do is run it once and raise awareness and funds to hopefully benefit others faced with this.

Special thanks to the family of Matt Bruce for helping to make this run possible.


Robert Cushman
Charles Roessler
 Noreen Poirier
 Daniel McGuane
 Charlie Henry
 Karen Genuardi
 Danielle Botticello
Kevin Losty
 Bill Judge
 Joseph Twichell
 Kathleen Thompson
 Brian Trocchio
 Jeannette cunniff
 Susan McMahon
 Richard Sebetes
 Danielle Botticello
Erin Mackenzie
 Julianne Rizzo
Cynthia Pioli
 Natalie Matisis
Damian Capobianco
 Charles Henry
 Elizabeth Thompson
 George Colella
David Underwood
 Emma Thompson
Chirag Patanaik
Andrew Rotondi
Elena Morgan
Leanna Lam
Margaret Carey
Sonny Zhao
Maggie Bender
Susan Pepin
Mark Prew
Timothy Hill
Dennis Bouvier
Alampu Maakaru
Jamie Rubin
Richard Miller
Monica Burnett
Leslie Stevens
Matt Chiott
Philip Rugg
Rebecca Dion
Eileen Harris
Jacqueline Brennan
Bryan Sprague
Steven Chen
Susan Farrell
Diane Kearns
Nancy Vaughn
Joshua Dion
David D'Amico
 Erin Higgins
 Pamela Leinenbach
 Joyce Melkonian
Armen Grigorian
 Zachary Eagan
Donna Sullivan
 Emilie Krueger
 Mary Conover
 David Doucette
 Nancy Babcock
 John Small
 Robin Palombo
 David Arond
 Coran Family
 John Powell
 Kieran Joshi
 Crystal Christian
 Kristen Alkhamis
Kathleen Bliss
 Majorie Goode
 Mary Schott
 Kathleen Contois
 Patricia Geary
 Jeff Sawyer
Joyce Silberling
 Sheila Keator
 Ellen LePage
 Ronald Garon
Craig Poole
 Andrew Frates
 Susan Davis
 Nichole Mannarino
 Richard Dove
 Jody Garber
 William Bailot
 Kenneth Ferreira
 Regie Wolff
 Laura Melkonian
 Michael Keating
 Linda Smith
 Deborah Katsiroubas
 Angela Wakefield
 Don Bravo
 Carlos Barbeiro
 Winifred Liakos
 Voyage, Inc.
  Richard Foley
 Phillip Perry
 Carol Battista
 Tom Delmar
 Marion Hamilton
John Patberg
 Jessica Langton
Michelle Kerr
 Linda Cottreau
James Miceli
 Ed Mackenzie
 Monica DeGiorgio
 Edwin Mackenzie
 Kally Maguire
 Coalition for the Preservation of Fatherhood
Andrew MacKenzie

Andrew good luck - drink lots of water. Great job marketing this – I bet lots of people would pay to get your dad to shut-up......
– David Underwood

Go, Andrew, Go!
– Eileen Harris

Good luck and keep up the good work for such a worthwhile cause!
Pamela Leinenbach

In honor of our dear friend David Garber
 – The Coran Family

Good luck in the marathon and raising money, Andy!
– James Miceli
 Andrew, I'm Rich Mitchell's girlfriend. He told me you were running for CCALS.
 I know about the great work they do and often support them. My grandfather
  died of ALS. Thanks for running for a great cause!

– Susan Davis
 Best of luck to you and thanks for carrying on for the cause.
– William Bailot
 In Memory of Elizabeth Ferreira
– Kenneth Ferreira

© Compassionate Care ALS •  P.O. Box 1052, West Falmouth, MA 02574 • (508) 444-6775 •
Supporting ALS Families since 1998